Wednesday, December 22, 2010

merry christmas

Hi all,

Jana has been an absolute champion the last 3 x weeks. She has been eating well and as happy as larry , and at childcare she has been doing some amazing paintings. She does them all unassisted which amazes me and they have all the kids crowding around her as she is the star of the class.

We have a busy patch coming up with xmas at our house this year plus Verena's nephew is staying with us. On boxing day we are having the sausage sizzle for the Biorehab for kids charity so a 6am start to pickup everything them finish at 5pm. Got plenty of helpers so will be a good day.

The biorehab for kids charity which pays for the Perth ABR Clinic costs got a much needed injection with a Telethon Grant which will see us through for at least another two years. That was such a relief as it was getting to a stressful stage as the money was running out fast.

Not much happening for the rest of christmas just spending lots of time with Jana and Verena and I'd say lots of beach. We took Jana to the beach a few times last year and she loves the water. The colder the better for her , she giggles her head off when you drop her in the cold water.

well hope you all have a great xmas and stay safe.

all the best from Paul , Verena and Jana. xx

Wednesday, December 1, 2010

been a while


Apologies for not blogging for a while it seems life got busy again... Jana has been going really well with her drinking. We now have a special cup that is cut out to go around her nose and she drinks on a good day 400 mls of thickened water. Her eating is good but still something upsetting her and sometimes she doesnt eat her meals. I think her 3 year old molars are moving early.

Jana and her Mum have been going to Hydrotherapy every week and Jana loves it. We also chuck her in the spa when we get the chance but it is a bit small to do much. She is still doing conductive education and now we are trying to potty train her which is not so much fun. She loves her childcare and they are so great there with the extra things they do for Jana, we really are lucky to have her in this childcare. She comes home buggered and is asleep by 6.30pm.

Biorehab for kids has the sausage sizzle on the 26th - boxing day at Melville Bunnings so we should raise some good money towards the ABR clinics. We also got a spot on the 29th Jan so a double bonus.

Well better go . Jana says hi to everyone.