Tuesday, February 23, 2010

tube weaning.... food can be fun.

well this week we started the tube weaning and what Mum and I do is play alot with my food. I get it all over me and in my ears , all over the place. hehe

I didn't realise food was so much fun and every now and then I chew on a bit and swallow it. Other times I still choke a bit so we are taking it nice and slow.

Mum and I had lots of fun together this weekend as Daddy went to Victoria for 4 days. It was the first time Daddy hasnt been here since I was born and it was great to see him yesterday. Mummy did such a good job looking after me and we had lots of baths. I was a bit grumpy at times.

Daddy said that he did something wrong on the blog and we couldnt read the messages everyone was leaving but he fixed it now. Sorry I didn't get back to you guys but from now on we will.

Well better get back to bed.

Lots of love Jana xxxx

Monday, February 8, 2010

lets get this tube out !!!!

Well I am really excited..... Mum and Dad have signed up for a special program called no tube in Austria and hopefully next week we will be doing alot of coaching over the net. We are just waiting for the final approval from my Doctors at Fremantle and we start.

What will happen is Mummy will get a big blanket on the floor and put all different types of food on it and we spend all day just playing with it. I get to try each taste and then after a few days we will take the tube out and try some solids. I have to be a good girl and eat otherwise I will get really hungry. But because I don't eat solids and only get tube fed Mummy says that I don't know what it is like to be hungry.

I think it will be good fun and it takes about 3 weeks. Mummy and Daddy are really proud of me and they think I will have a good chance of getting off this tube for good. Then I won't have to have that horrible tape on my face that gives me a nasty rash and that tube is so uncomfortable going down my throat.

I'm ready to eat !!!

Also some really exciting news Mum and Dad have organised a fundraiser lunch for me at Dad's golf course in April. This is to help me on my tube weaning and ABR and all the special things me and Mum do during the week. So far we have some great prizes and stuff to auction off and everyone has been great with their help. Mum is going to get the invites out in 3 weeks time and it is going to be a great day.

On a very sad note though we lost one of our friends Emma last week and we send all our love to her Mum and Dad and family. xxxxx