all better

Hi

My teeth are all through now and no more pain. The last 2 x days Mum has used a styrofoam cup with a cutout in it for my nose and she gets me to drink from that. Guess what I love it.... finally we found something that I can use to drink from that doesn't scare me. I have been drinking up to 300mm a day which means definately no more tube if I keep it up.

Becuase my teeth don't hurt anymore I am eating really well again and trying all sorts of different food. It is amazing how well I eat now after the "no tube program" mum and Dad did with me via Austria. I also do ABR every day and don't complain anymore. I just watch the Wiggles while Mum works on my back. At night I use the machine all night and now I have a big bed it is so easy. Mum or Dad usually end up sleeping in my bed now when I wake up as it is so comfy......

Soon we all go to Queensland as Dad has a conference to go to so we go too. We are staying at the Gold Coast and Mum and I are going to go to Seaworld and also go shopping. Can't wait it should be fun.

Ok better go. Lots of luv

Jana

Hi

Well this week we went to hydrotherapy again and I am loving it....we get to splash around and do excercises.
I am now in the toddlers room at childcare and this week I spent the whole day with the toddlers. Now I am with the big kids I have to do more things which is fun. I am slowly getting better after my last big tooth came through. It still really hurts and every day I get alot of pain from them.
Mum and Dad were excited becuase Mum's Bad Egg shirts got on the footy show the other night. Sam Newman wore our shirt on the show the last two weeks. Dad sent some shirts to him and he was good and wore them on the show. It was great !! I sent him a thankyou letter.
This weekend I spend alot of time at Nanna's which should be fun and Mum and Dad go out and relax. I have my tube back in for a few days again just to get some water into me as while my tooth hurts I don't drink at all and can't do poo's. Hopefully soon I will start to drink again.

Ok well we will see you next week.

Luv Jana xx

my own big bed

hi everyone,

sorry it's been so long but I've had more teeth coming through and been very grumpy for a month now. These last two big teeth just keep coming and then I got an ear infection (in both ears!)

Well for the last 5 months I haven't been sleeping very well and usually end up in Mum and Dad's bed because it is nice and warm. Yesterday we got my new big bed delivered and Daddy set it all up and took my cot to pieces. I went shopping with Mum on Saturday and I picked out the Dora the explorer bed linen. My first sleep was good but I still woke up half way through the night so Dad stayed with me for a few hours then Mum jumped in my bed for a few hours until I woke up this morning.

Hopefully this means I can get back on the ABR machine at night as I have been naughty and not getting much machine time.

On the weekend we went for a walk through Wireless Hill Park and looked at the wildflowers then jumped in the spa and did some hydrotherapy. Mum takes me every week not to the Centre for Cerebral Palsy and we go into the pool for hydrotherapy there as well. I love the water.

Thats it for this week.

Luv Jana xx

just one last tooth.....

Hi everyone,

Well this week I have been in alot of pain from my last tooth and it is driving me crazy. It is a big one too and once this one is through I will be sleeping like a baby. I have been keeping Mum and Dad up all night and I can't get on my ABR machine at the moment.

I haven't been drinking much water either so Mum gives me mandarins to suck on and I get all the juice out of two mandarins at a time. My eating is still good and I even have solid food twice a day as well as my pureed fruit and vegies mixed with yoghurt.

Dad has been working alot on the house and has built a great backyard for me to play in. We now have a pergola to keep the sun off and the fish pond has been moved to give me more room. The spa is back running again so this weekend we start hydrotherapy again. It's a bit cold to do it at the moment at night so Sunday afternoons sound good to me.

This Saturday night we have Nanna and Gwen coming over and Dean and Seiko bring little Hikaru over. She is only 5 months old and very cute. Mum is going to cook a traditional Swiss fondue but I will be asleep so I won't get to taste it. Hopefully today I can be happy enough to go to childcare as I had a bad fever last night from my tooth. They have put me in with the big kids now and we have a great time.

OK next time we talk I will be happier as my tooth will be through.

Love Jana. xx

happy birthday jana

Happy birthday to me , happy birthday to me.

Two years old today , woohoo. We are having a party tonight and hopefully I get lots of great presents and yummy food.

I have been such a good girl this week and back to sleeping in my own bed after our long trip to Switzerland. I am back on the ABR machine at night and mummy is giving me the manual excercises as well to make me strong.

My last tooth is coming through soon and then thats it for a few years , gee I am sick of having sore teeth. Off to childcare today and they said I have grown up while I was away and they all missed me very much.

Bye

Luv Jana

Switzerland Holiday

Hi

Well we are all back from Switzerland and we had a great time.

Mum , Dad and me flew to Dubai and I slept the whole way on Dad's chest as it was bumpy and then we went from there to Zurich. We caught a train to Nanna's farm and met all my relatives I haven't seen yet. They all agreed I am very cute !

We then went to a small town called Zermat which is in the alps and on the way there we took a short cut which meant we had to drive our car onto a train and go through a big tunnel through the mountains. We stayed in the car and it was pitch black. When we got to Zermat the next day we went to Gornergracht and had lunch at 3200m high overlooking the Materhorn. We were there for 3 hours and Dad and I got sunburnt from the snow. Dad's whole face peeled off haha..

We also went for 3 x days to Germany to a town called Fussen and we visited the Nueswanstein Castle. It was amazing to see and the walk back from the castle down the hill was exciting in the pram !! My Aunty Margrit and Uncle Martin took us out for lunch in a castle on a balcony hanging over a cliff which overlooked the Rhein river then we went to the Rhein Falls which is a huge waterfall.

Then my tooth started to play up and I didn't eat for 5 days. It is my second last tooth and a big one. It was so sore Mum and Dad had to put my tube back in for a few days to get some water into me but after a week I came good and was a princess for the rest of the trip.

We went for lots of walks and day trips visiting people and then went to France to the Alsace region where they make wine.We stayed in Frances most beautiful village in a house that was 400 years old. The floor was very creaky and it looked right down the main town square. It was so cool of a place we loved it. Mum and Dad ate alot and loved the wine. I ate whatever Mum and Dad ate , oh I forgot to tell you I now love eating solid food and whenever Mum or Dad doesn't give me some food I get really cranky at them. Dad said I am a bit of a pig now when it comes to food!!

We then went back to Nanna's farm and had a farewell party with Tesi,Peter,Sasha and Mums friends and family at Ur's patio. We got the barbie going and Dad cooked up alot of meat and Aunty Elisabeth and Nanna did the salds. I stayed up until 11pm as I am now a party girl...

We said our goodbyes which was very sad and flew off to Dubai for a days stopover. When we got there we caught up with cousin Wayne and had a swim at the pool. Dad went off for a Desert Safari and got home that night then we flew off to Perth. I didn't cry the whole way back and was a good girl. We then got home and Nugget the cat was there waiting for us , he is fat now as everyone was feeding him lots.

Now we are home and I have to get used to sleeping at Perth time and getting back into the ABR machine and excercises. I am eating really well now and love my food , I so don't miss the tube.

Good to talk to you guys again and will let you know this weeks adventure soon.

Love Jana xxxx

holiday and tube gone .....

Hi

Well after the fundraiser we went to Margaret River for the long weekend. I cried for the whole trip down there and Daddy was pretty stressed by the time we got there. But I was such a good girl after that , I had some pretty big teeth coming thru so thats why I was grumpy.

We had a great time and Mum and Dad took me to some Wineries and nice places along the beach. It was our first trip for over a year and I had so much fun. When we got back I was bit sick from all the teething so Mum had to put the tube back until I got better. Now I am all good again and we chucked the tube out for good now.....

It's mothers day tomorrow and Dad and I went shopping this morning for a present for Mummy. We got her some great things and also a present for Nanna.

I am eating so much now I can't believe I didn't like food and I even get really upset when I am hungry. Today I drank a whole bottle of water which Mum thickens for me and gives it to me with a spoon. Once I drink well we can definately throw that tube out wooowooo.

Only two weeks now until we visit my other Nanna in Switzerland and my Uncle and Aunties. I can't wait it should be great!!!

Ok I have to go and have a shower with Daddy and off to bed.

Goodnight love Jana xxx