Switzerland Holiday

Hi

Well we are all back from Switzerland and we had a great time.

Mum , Dad and me flew to Dubai and I slept the whole way on Dad's chest as it was bumpy and then we went from there to Zurich. We caught a train to Nanna's farm and met all my relatives I haven't seen yet. They all agreed I am very cute !

We then went to a small town called Zermat which is in the alps and on the way there we took a short cut which meant we had to drive our car onto a train and go through a big tunnel through the mountains. We stayed in the car and it was pitch black. When we got to Zermat the next day we went to Gornergracht and had lunch at 3200m high overlooking the Materhorn. We were there for 3 hours and Dad and I got sunburnt from the snow. Dad's whole face peeled off haha..

We also went for 3 x days to Germany to a town called Fussen and we visited the Nueswanstein Castle. It was amazing to see and the walk back from the castle down the hill was exciting in the pram !! My Aunty Margrit and Uncle Martin took us out for lunch in a castle on a balcony hanging over a cliff which overlooked the Rhein river then we went to the Rhein Falls which is a huge waterfall.

Then my tooth started to play up and I didn't eat for 5 days. It is my second last tooth and a big one. It was so sore Mum and Dad had to put my tube back in for a few days to get some water into me but after a week I came good and was a princess for the rest of the trip.

We went for lots of walks and day trips visiting people and then went to France to the Alsace region where they make wine.We stayed in Frances most beautiful village in a house that was 400 years old. The floor was very creaky and it looked right down the main town square. It was so cool of a place we loved it. Mum and Dad ate alot and loved the wine. I ate whatever Mum and Dad ate , oh I forgot to tell you I now love eating solid food and whenever Mum or Dad doesn't give me some food I get really cranky at them. Dad said I am a bit of a pig now when it comes to food!!

We then went back to Nanna's farm and had a farewell party with Tesi,Peter,Sasha and Mums friends and family at Ur's patio. We got the barbie going and Dad cooked up alot of meat and Aunty Elisabeth and Nanna did the salds. I stayed up until 11pm as I am now a party girl...

We said our goodbyes which was very sad and flew off to Dubai for a days stopover. When we got there we caught up with cousin Wayne and had a swim at the pool. Dad went off for a Desert Safari and got home that night then we flew off to Perth. I didn't cry the whole way back and was a good girl. We then got home and Nugget the cat was there waiting for us , he is fat now as everyone was feeding him lots.

Now we are home and I have to get used to sleeping at Perth time and getting back into the ABR machine and excercises. I am eating really well now and love my food , I so don't miss the tube.

Good to talk to you guys again and will let you know this weeks adventure soon.

Love Jana xxxx

holiday and tube gone .....

Hi

Well after the fundraiser we went to Margaret River for the long weekend. I cried for the whole trip down there and Daddy was pretty stressed by the time we got there. But I was such a good girl after that , I had some pretty big teeth coming thru so thats why I was grumpy.

We had a great time and Mum and Dad took me to some Wineries and nice places along the beach. It was our first trip for over a year and I had so much fun. When we got back I was bit sick from all the teething so Mum had to put the tube back until I got better. Now I am all good again and we chucked the tube out for good now.....

It's mothers day tomorrow and Dad and I went shopping this morning for a present for Mummy. We got her some great things and also a present for Nanna.

I am eating so much now I can't believe I didn't like food and I even get really upset when I am hungry. Today I drank a whole bottle of water which Mum thickens for me and gives it to me with a spoon. Once I drink well we can definately throw that tube out wooowooo.

Only two weeks now until we visit my other Nanna in Switzerland and my Uncle and Aunties. I can't wait it should be great!!!

Ok I have to go and have a shower with Daddy and off to bed.

Goodnight love Jana xxx

what a great day

Hi everyone

Well we had such a great day at my fundraiser on the 18th April. We had 160 guests for a beautiful luncheon at Seaview Golf Club , the weather was awesome and the place looked so good with the view over the ocean.Mum and Dad spent alot of time getting everything ready but they said they loved it. It really looked great.

We had Adrian Barich from the Eagles / channel seven as the MC and he did such a fantastic job and was very funny. Daddy had organised an auctioneer called "tiny" Holly and he and Peter and his wife from Starworld framing did such a good job off selling all the stuff for me.We had Geelong,Eagles,Dockers,Collingwood jumpers , a guitar from the rolling stones and even Sir Richard Branson signed a shirt just for me when he landed his helicopter at Seaview a few weeks ago. Roger Federer signed a picture for me and we got alot of other stuff donated.People were so generous.
Tiny was so funny everyone was in hysterics. Daddy made a very touching slideshow to music which made everyone cry as it showed everyone how strong I have been the last two years.
The food was so nice and the chefs from Challenger TAFE served all 160 meals in just 12 minutes from Seaviews tiny kitchen.Mum and Dad were amazed at how they did it.
Once everyone met me they all donated their time even the 12 chefs and kitchenhands,waiters,Adrian Barich and Starworld framing. I was so happy all day and I didn't even have a sleep.
Anyway everyone had such a great time we all watched the sunset which was the best for months and Mum and Dad said they ordered that one just for me...
Some people came up to Mum and Dad and said it was the best function they had ever been to and we raised alot of money for my ABR and other treatments.

Lots of love Jana

big weekend coming up.

Hi everyone,

sorry I took so long to get back to you but we've been busy. Last week we had the ABR trainers over in Perth so we spent all weekend learning new exercises. I was a good girl most of the time but got pretty tired by the end of the day and cried a bit. I have lots of new teeth coming thru again so it hurts alot.

Mum and Dad had to put my tube back in just to give me water but I still love to eat. Hopefully we can take it out again this week as I have been so good with my food I am starting to drink little bits of water but from a spoon. The doctors in Austria will tell Mum what to do tonight and hopefully we can whip this tube out once and forall.

My big fundraising lunch at Dad's golf club is on theis Sunday and we have 160 people coming. I am really excited and Mum and Dad have been working flat out for 3 months on this day so hopefully we can raise lots of money to help me get ABR and other treatments.

Ok well I will let you know how we go next week

Love Jana.

xxxxx

tubes gone wooooowooooo

guess what my tube is out and I'm eating like a little piggy.....

after 5 weeks of tube weaning we finally got rid of the tube. I still have to drink better but every day I enjoy mummy's magic water (thickened water with cordial) and yesterday drank 200ml.

every day I eat 5 times and now I get grumpy when I don't get fed !!! we even went to Sweetlips for fish and chips last night and I ate a whole chip on my own plus my normal food.

love Jana xx

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yummy yummy

well we are in week 5 of the tube weaning from Austria and I am now pigging out. Yesterday I had 5 x big tubs of food and even had some icecream with Mum and Dad at the beach in Rockingham. We went for a big drive and then walked all along the beach and had lots of fun.

I still don't like to drink water yet so Mummy says the tube stays until I start to drink. I have to learn how to swallow the water but I'm nearly there.

Mum is still working hard organising our lunch we are having at Seaview and we even got Sir Richard Branson to sign a shirt for me to auction when he landed his helicopter at Dad's golf club. We have shirts from Collingwood , Geelong , Dockers and Eagles all signed for me and Mummy even got Roger Federer to sign a picture for me (coz he's Swiss too !!)

Well hopefully by next blog I will be drinking then we can take the tube out.... wooowooo


Love Jana xxxx